H.R. 3491 · Where this bill is now
In the Senate
Passed the House Jul 20, 2026. Received Jul 21, 2026; no Senate vote yet
What this bill does
In plain words · AI-written from the official summaryEstablishes NIH Down syndrome research program
This bill creates an official program at the National Institutes of Health to fund research and training about Down syndrome and related health conditions. The NIH will work with experts in the field and make sure not to repeat research already being done. Every two years, the NIH will report to Congress about what the research has found and how it might help doctors care for people.
How it affects you
If you or someone you know has Down syndrome, this program could lead to new medical treatments and better ways to improve quality of life. The research might also help people living with conditions that often happen alongside Down syndrome. For most others, this is a foundational investment in health research that happens without direct personal impact.
Read the official summary (Reported to House, Jul 2, 2026)
DeOndra Dixon INCLUDE Project Act of 2025
This bill provides statutory authority for a program of the National Institutes of Health (NIH) that carries out research and training relating to Down syndrome, including with respect to co-occurring conditions and improving the quality of life of affected individuals. The NIH must implement the program in consultation with relevant stakeholders and avoid duplicating existing NIH Down syndrome research.
Biennially, the NIH must submit to Congress a report cataloging the research, including results that may be used in medical care or clinical research.
Written by AI (Claude) using only the official summary by the Congressional Research Service, the Library of Congress’s nonpartisan research staff. It can miss nuance, so check the official summary and the bill text for details.
1st SessionH. R. 3491
AN ACT
DeOndra Dixon INCLUDE Project Act of 2025
Sponsor: Rep. Diana DeGette (D-CO-1) · Introduced May 19, 2025 · Health · 4 versions of the text
Sources: Congress.gov actions and votes · bill text from GovInfo · latest official action Jul 21, 2026: “Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.”
Sections
The wording of this bill hasn’t changed across its 4 official versions.