Advisory Council on Headache Disorders Research, Care, and Services

(a) Establishment The Secretary shall establish and maintain an Advisory Council on Headache Disorders Research, Care, and Services (referred to in this section as the Advisory Council) for the purpose of advising the Secretary on matters relating to headache disorders. (b) Membership (1) Federal members The Advisory Council shall be comprised of experts, to be appointed by the Secretary, who collectively are from various backgrounds and perspectives, including at least one member from each of the following: (A) The National Institutes of Health. (B) The Office of Research on Women’s Health. (C) The Food and Drug Administration. (D) The Centers for Medicare & Medicaid Services. (E) The Indian Health Service. (F) The Department of Veterans Affairs. (G) The Department of Defense. (H) The Centers for Disease Control and Prevention. (I) The Agency for Healthcare Research and Quality. (J) The Patient-Centered Outcomes Research Institute. (K) The Advanced Research Projects Agency for Health. (L) The National Center for Complementary and Integrative Health. (M) The Department of Education. (N) Other Federal departments and agencies. (2) Non-Federal members In addition to the members specified in paragraph (1), the Advisory Council shall include 12 members, to be appointed by the Secretary, who shall include representatives of minority communities, communities disproportionately affected by headache disorders, and communities underrepresented in headache disorders research, who shall each be from outside the Federal Government, and who shall include the following: (A) Two individuals who are patient advocates, including one individual who is living with migraine and one individual with a non-migraine headache disorder. (B) An individual who is a caregiver of a child or adolescent with a headache disorder. (C) Individuals who are healthcare providers specializing in headache (those with a patient base where greater than 80 percent are headache patients), including— (i) at least one individual who is Doctor of Medicine or Doctor of Osteopathic Medicine; (ii) at least one individual who is an Advanced Practice Provider; (iii) at least one individual who is a behavioral health specialist; (iv) at least one individual who is an orofacial pain specialist; (v) at least one individual who is a front-line provider (such as a primary care physician or emergency care provider); and (vi) at least one individual who is a researcher with expertise in headache disorders. (D) At least one individual who is a representative of a non-profit patient advocacy organization focused exclusively on headache disorders. (c) Meetings (1) Frequency The Advisory Council shall meet— (A) at least once each quarter during the 2-year period beginning on the date on which the Advisory Council is established; and (B) at the Secretary’s discretion after the expiration of such period. (2) Annual research meeting Not later than two years after the date of enactment of this Act, and every year thereafter, the Advisory Council shall convene a meeting of Federal and non-Federal organizations to discuss headache disorders research. (d) Termination The Advisory Council shall terminate on the sunset date specified in section 7.