Collaborative comprehensive plan to address rare diseases and conditions in minority populations

Subpart 20 of part C of title IV of the Public Health Service Act (42 U.S.C. 285t et seq.) is amended by adding at the end the following: 464z–7. Collaborative comprehensive plan to address rare diseases and conditions in minority populations Not later than 180 days after the date of enactment of this section, the Director of NIH, the Director of the Institute, the Director of the National Center for Advancing Translational Sciences, the Director of the National Heart, Lung, and Blood Institute, and the directors of the other agencies of the National Institutes of Health in collaboration (and in consultation with the advisory council for the Institute) shall— (1) develop a comprehensive Federal plan to address rare diseases and conditions in minority populations (as those terms are defined in section 409K), including a strategy to increase diversity in genetic programs at the program for Therapeutics for Rare and Neglected Diseases at the National Institutes of Health; (2) conduct or support through grants or cooperative agreements basic, clinical, and translational research on rare diseases and conditions in minority populations, including research on— (A) early detection, diagnosis, and treatment of such diseases and conditions in such populations; and (B) improving the quality of life for individuals with rare diseases or conditions and their families; (3) conduct or support clinical training programs for physicians and other health care practitioners with respect to detecting, diagnosing, and treating such diseases and conditions in such populations; and (4) develop guidance for increasing participation of health professionals who are members of minority groups (as defined in section 464z–3) in research conducted or supported by the National Institutes of Health on such diseases and conditions in such populations..