Pilot programs to develop, study, or evaluate approaches to monitoring and caring for brain tumor survivors

Part B of title IV of the Public Health Service Act (42 U.S.C. 284 et seq.) is amended by adding at the end the following: 409K. Pilot programs to develop, study, or evaluate approaches to monitoring and caring for brain tumor survivors (a) In general The Director of NIH may, as appropriate, make awards to eligible entities to establish pilot programs to develop, study, or evaluate approaches, including primary and specialty care, for monitoring and caring for adult and pediatric brain tumor survivors throughout their lifespan, including evaluating models for transition to post-treatment care and care coordination. (b) Awards (1) Eligible entities (A) In general For purposes of this section, an eligible entity is— (i) a medical school; (ii) a children’s hospital; (iii) a cancer center; (iv) a community-based medical facility; or (v) any other entity with significant experience and expertise in carrying out the activities described in subsection (a). (B) Types of entities Awards under this section shall be made, to the extent practical, to— (i) small, medium, and large-sized eligible entities; and (ii) sites located in different geographic areas, including rural and urban areas. (2) Peer review In making awards under this section, the Director of NIH shall comply with the peer review requirements in section 492. (3) Use of funds Funds from awards under this section may be used to develop, study, or evaluate one or more models for monitoring and caring for brain tumor survivors, which may include— (A) evaluating follow-up care, educational accommodations, monitoring, and other survivorship programs (including peer support and mentoring programs); (B) developing and evaluating models for providing multidisciplinary care; (C) disseminating information to health care providers about culturally and linguistically appropriate follow-up care for brain tumor survivors and their families, as appropriate and practicable; (D) developing and evaluating existing psychosocial evaluations, counseling, and support programs to improve the quality of life of brain tumor survivors and their families, which may include peer support and mentoring programs; (E) designing and evaluating tools, which may include tools generated by artificial intelligence and machine learning, to support the secure electronic transfer of treatment information and care summaries from brain tumor care providers to other health care providers (including primary and specialty care providers), which information and care summaries shall include risk factors and a plan for recommended follow-up care; (F) developing and evaluating initiatives that promote the coordination and effective transition of care between brain tumor care providers, primary and specialty care providers, mental health professionals, and other health care professionals, as appropriate, including models that use a team-based or multi-disciplinary approach to care; and (G) disseminating information described in subparagraphs (A) through (F), including with respect to models, evaluations, programs, systems, and initiatives described in such subparagraphs, to other health care providers (including primary and specialty care providers) and to pediatric brain tumor survivors and their families, where appropriate and in accordance with Federal and State law. (c) Authorization of appropriations There are authorized to be appropriated to carry out this section $5,000,000 for each of fiscal years 2026 through 2030..