Standardized data for diagnosis research and improvement

(a) In general The Secretary of Health and Human Services (referred to in this section as the Secretary) shall coordinate with relevant departmental components to promote the standardization, interoperability, and responsible use of key data elements to support diagnostic safety and quality research and improvement. (b) Consultation with expert panel In carrying out subsection (a), the Secretary, in coordination with the Director of the Agency for Healthcare Research and Quality, the Administrator of the Centers for Medicare & Medicaid Services, the Director of the National Library of Medicine, the Chief Data Officer of the Department of Health and Human Services, and the Chief Artificial Intelligence Officer of the Department of Health and Human Services, shall convene an expert panel to consider and make recommendations to the National Coordinator for Health Information Technology regarding the specific United States Core Data for Interoperability data elements and classes needed to accelerate diagnostic safety and quality research, training, and quality improvement including— (1) the fidelity, interoperability, auditability, and socio-technical aspects of electronic vocabularies and ontologies related to presenting symptoms as stated by patients, chief complaints of patients, and the status of diagnosis (such as tentative, working, or confirmed); (2) the development and use of symptom-based clinical registries; and (3) enhanced data capabilities that are necessary to support both research and improvement of diagnostic safety and quality. (c) Report The Secretary shall make available a summary of the panel’s recommendations and planned actions to advance the integration of such recommended elements into the learning infrastructure for diagnostic safety and quality. (d) Authorization of appropriations To carry out this section, there are authorized to be appropriated such sums as may be necessary for each of fiscal years 2027 through 2029, to remain available until expended.