Stakeholder meeting on survivorship transition tools; publication of information resources

(a) In general The Secretary shall convene a stakeholder meeting (in this section referred to as the meeting) to evaluate strategies, including the use of information technology, to improve transitions in care from active treatment to long-term. (b) Participants In conducting the meeting, the Secretary shall ensure that the participants include representatives of patient advocacy organizations, medical professional societies, community-based organizations, electronic health record vendors, information technology experts, and other stakeholders of the meeting. (c) Consideration of existing tools In conducting the meeting, the Secretary shall ensure that the participants consider existing tools for improving transitions to survivorship care, such as— (1) the survivorship guidelines of the National Comprehensive Cancer Network and the American Society of Clinical Oncology; (2) the Passport for Care survivor website; (3) survivorship care software applications that have been developed by patient advocacy organizations, research foundations, and for-profit entities; and (4) other information and tools that may improve transitions in care and improve overall quality of survivorship care. (d) Consideration of privacy and security implications In conducting the meeting, the Secretary shall feature collaboration with the Office for Civil Rights of the Department of Health and Human Services to evaluate the privacy and security implications of— (1) consolidating treatment history and survivorship guidelines into a personalized survivorship care plan that outlines future health care needs after completion of active treatment; (2) patient use of computer or mobile phone-based application programs described in subsection (c)(3); and (3) taking into consideration the results of meeting under subsection (a). (e) Publication of information resources (1) In general Not later than 36 months after the date of enactment of this Act, the Secretary shall, taking into consideration the results of the meeting, publish information resources for cancer patients and providers on strategies for consolidating treatment history and survivorship guidelines into a personalized survivorship care plan to guide survivorship monitoring and follow-up care. (2) Inclusion of recommendations on patient use of software application programs The information resources referred to in paragraph (1) shall include recommendations on patient use of software application programs to develop personalized survivorship care plans. (f) Electronic health record defined In this section, the term electronic health record means an electronic record of health-related information on an individual that is created, gathered, managed, and consulted by authorized health care clinicians and staff.