Delaying kidney disease impact
Title VII — Addressing high-impact minority diseases › Subtitle P — New Era of Preventing End-Stage Kidney Disease
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Section 1881(f) of the Social Security Act (42 U.S.C. 1395rr(f)) is amended by adding at the end the following new paragraph: (9) (A) The Secretary shall conduct experiments to evaluate methods for treating rare kidney disease, giving particular attention to treatments that would delay or eliminate the need for dialysis and transplant. (B) The Secretary shall conduct a comprehensive study of methods to increase public awareness of rare kidney disease. (C) The Secretary shall submit to Congress, not later than 24 months after the date of the enactment of the Health Equity and Accountability Act of 2026, a report on the experiments and study conducted under subparagraphs (A) and (B). Such report shall include recommendations for legislative changes that the Secretary finds necessary or desirable as a result of such experiments and study..