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S. 5554IntroducedSenate · nowHousePresidentLawIn committee
Sec. 3 · S. 5554

Reauthorization and improvement of Johanna’s Law

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Section 317P(d) of the Public Health Service Act (42 U.S.C. 247b–17(d)) is amended— (1) in paragraph (1)— (A) in subparagraph (A), by inserting, in coordination with relevant programs of the Health Resources and Services Administration and the National Cancer Institute, after The Secretary; and (B) by adding at the end the following: (D) Enhanced outreach and education Activities under the national campaign under subparagraph (A) shall include— (i) developing and disseminating culturally and linguistically appropriate public service announcements and educational materials directed toward populations at elevated risk based on race, ethnicity, genetic predisposition, or family history; (ii) conducting targeted outreach activities for populations experiencing elevated risk of ovarian cancer or disparities in outcomes, including populations with hereditary cancer syndromes and populations residing in rural and medically underserved communities; (iii) promoting awareness of hereditary cancer syndromes associated with ovarian cancer risk, including hereditary breast and ovarian cancer syndrome and Lynch syndrome, and the availability of genetic counseling, genetic testing, and evidence-based risk-reducing interventions; (iv) disseminating information regarding coverage and benefits relating to genetic counseling, genetic testing, and risk-reducing interventions available under Federal and private health insurance programs; (v) developing and distributing educational materials for patients and health care professionals regarding current evidence-based guidelines relating to hereditary cancer risk assessment, genetic counseling, genetic testing, and referral to specialty care; and (vi) developing and disseminating information for patients and health care providers on evidence-based ovarian cancer risk-reduction strategies, including opportunistic salpingectomy and the circumstances in which such an intervention may be appropriate.; (2) by inserting after paragraph (4), the following: (5) Demonstration projects (A) In general The Secretary shall award grants to carry out demonstration projects under this subsection to test and evaluate outreach strategies relating to ovarian cancer awareness, hereditary cancer risk assessment, genetic counseling, genetic testing, and access to specialty care. (B) Preference In awarding grants under this paragraph, the Secretary shall give preference to applicants experienced in serving rural, medically underserved, or high-risk populations. (C) Eligible entities Entities eligible to receive a grant under this paragraph shall include State, local, and Tribal public health departments, community health centers, rural hospitals, academic medical centers, nonprofit organizations, and other entities determined appropriate by the Secretary. (D) Reports Not later than 3 years after the date on which grants are awarded under this paragraph, and annually thereafter, the Secretary shall submit to Congress a report that evaluates outcomes of projects carried out under this paragraph. Such reports shall identify barriers to care and contain best practices. and (3) by striking paragraph (6) and inserting the following: (6) Authorization of appropriations For the purpose of carrying out this subsection, there is authorized to be appropriated $20,000,000 for each of fiscal years 2027 through 2031..

Sec. 3: Reauthorization and improvement of Johanna’s Law · Public Law Tracker